The family situation is very hard. Rafalek’s parents have two more sons (Mariuszek 16 years old and Mateusz 14 years old) who are healthy and go to school. They live in a tiny village. Until recently they haven’t had bathroom and hot water in their house. Thanks to goodwill people their living conditions have been improved. Parents do not have enough money to pay for rehabilitation, sanatoria and rehabilitation camps. Their financial situation is very hard, They are on government support because Rafalek requires constant help so his parents cannot hold regular jobs.

They do not have enough money neither for necessary rehabilitation nor for current expenses. They also need money to make the household more accessible for Rafalek as he needs a wheelchair to move around. He needs to go on rehabilitation camps but these camps are very expensive, the approximate cost is 2000 – 2500 PLN. The cost is covered partly by PCPR (National Center for Family Help) and Rafalek’s parents.

As the disease progresses the conditions of Rafalek’s health will worsen. He may develop problems with breathing which, in turn, will make it necessary to breathe with the help of respiratory equipment. He can also face spine-related problems which can be treated only by a surgery. As we all know all of the procedures are very expensive.